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Take a Deep Breath

Updated: Jul 21, 2022

This morning when I woke up, I knew something wasn't right. I was really tired. Not the kind of tired from not getting enough sleep, but the tired I feel when I know my head isn't going to cooperate. This is frustrating for me because it can trigger so much anxiety about what may happen. Am I going to get a full blown hemiplegic migraine? If I do, am I going to pass out and I won't be able to get help? If a migraine is coming, how long with this one last for?


Unfortunately, in the middle of a Zoom meeting, I started feeling the nausea. This is the first aura sign I usually get. I started mixing up my words which I'm always self conscious about. All of the people in the meeting with knew about my condition, but it still doesn't make it any easier when I start saying words backwards or forgetting what I'm saying. I excused myself for a minute, took my Zofran, and went back to the meeting. By the end of the meeting, I could not focus and needed to close the shades and my eyes.


My neurologist prescribed Nurtec which really helps with the pain. However, one of the side effects is nausea. So when I have tried it on three different occasions (gotta give it a chance!), I was ten times more nauseated. No good. Another med which doesn't help. I have tried so many rescue meds and none have helped. It is so frustrating!!!. There is no taking a pill and going back to my day. My day has now ended. I'm in bed with the blinds closed, pain pill, Benadryl (which I will post about at a later date about why it's good to have), warm blanket to help with the chills, and quiet. Today I'm fortunate though that my migraine isn't full blown. I'm experiencing awful dizziness so I am in bed. I can type for a brief amount of time. I will close my eyes for awhile, open and type a few sentences, then repeat. I feel I'm at least being productive.


I know in reading the thousands of posts from women in the support group, having hemiplegic migraine has drastically changed their lives. It can be depressing and isolating. This is why I'm so grateful I have made friends with other women in the group who understand my life. I am forever grateful for our group and the positive change it has made for me in my life.


 
 
 

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Women's Hemiplegic
Migraine Alliance

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